If you are living with post-polio syndrome, you already know how little the standard clinical conversation offers. The fatigue, the new muscle weakness, the cold intolerance arriving decades after the original infection — these are real, measurable, and biologically explicable, yet they are still met in many clinics with the same limited response: rest more, pace yourself, accept the progression.

Living with Friedreich's ataxia — or supporting someone who does — means navigating a condition where the body's most fundamental energy machinery is under attack. It is not simply about coordination or balance.