Rift Valley fever rarely generates headlines in high-income countries, but for anyone who has worked near livestock in East or sub-Saharan Africa, traveled through an outbreak region, or experienced a sudden febrile illness after handling animal tissues, the questions it raises are neither abstract nor easily dismissed.

If you or someone in your family has been told the words "sialidosis," "cherry-red spot myoclonus," or "NEU1 deficiency," you already know how thin the available information tends to be. Search results are dominated by textbook definitions and rare-disease directories, while the practical questions — what should actually be tested, how often, and what any of it means for day-to-day decisions —…