Living with spondyloenchondromatosis means navigating a condition that most physicians have never treated, most labs have never specifically tested for, and most search results reduce to a handful of case reports.

If you've been told you have cervical myelopathy — or you're watching early signs of it in a parent, a partner, or yourself — you've probably noticed that most of the advice out there stops at the same place: "see a spine specialist," "avoid neck strain," "consider surgery if it progresses." None of that is wrong.